A brief reflection on Jan Kruger’s comments in the Canberra Times yesterday and how they sit with ImagineMore’s values…
The news article in the Canberra Times today about respite support refers to what has been a hard decision by Disability ACT.
See the article here.
Whilst ImagineMore recognises that these decisions are extremely tough on people who depend on the facilities on a day to day basis, we also recognise that they were never designed to provide respite for 3 weeks out of 4 for individuals and their carers, as has been the case in recent times.
ImagineMore is of the view that efforts should now be directed to enabling families to find the space to think of alternatives to extended periods of respite and that this respite should be meaningful for the individual who is being cared for. We also acknowledges that this is a journey that will take considerable time for many families – perhaps even years for some. Using respite to transition to an individuals home could be one idea of many that is meaningful.
Change is difficult and needs to be supported. The NDIS media releases have been full of talk about supported decision making and supports for families in building visions. To be honest at ImagineMore we are disappointed in the efforts to support families so far and feel some of the efforts made in supporting service providers could have been directed in supporting individuals and families / carers to create a vision.
Recently a service provider called and asked the sorts of things we might like supported out of respite care. The provider is part of a consortium seeking to tender for some of the services Disability ACT is seeking to offer to organisations as part of it’s restructure as we head toward the NDIS. Here is what we said to them – and please understand these thoughts are part of a verbal discussion so they may not flow.